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07

Jul

Cleft Palate

Sorry for the cliffhanger.  Things have been crazy around here! 

Baby E has a cleft palate that wasn’t caught at the hospital, so we’ve had to run around to see a bunch of specialists.  He was having a lot of trouble eating by breast and bottle, but we met with a swallow therapist (yeah, that’s a thing) and learned how to feed him using a bottle called the Haberman Special Needs feeder.  It sort of squirts milk into his mouth so he doesn’t have to suck, since the lack of separation between his nasal cavity and mouth means he can’t generate much suction.  I have been exclusively pumping so he still gets breast milk.  It’s really hard, and I don’t know how long I will be able to keep it going, but for now, my goal is 6 month.

Looking ahead, he’ll need major surgery at 10 months old.  Trying not to focus on that part too much now…

  1. myaccidentallyonpurpose said: I am sorry your little man has to deal with this, thankfully it is something that can be repaired. how is he otherwise? does it cause him any pain?
  2. damntherabbits posted this